Duality

January 2, 2017

I’m not super sure where to start. I’m not even sure I want to start at all. It’s been a while, I don’t know how long, and my creative juices have not only stopped flowing, I’m not sure there’s a body of creativity left. When I imagine my own well of creativity, I see a dry, cracked, dip in a hard, unforgiving ground. Nothing left of the water that may once have settled there, that may once have freely flowed along the channel, nourishing all it encountered. Now, just a dry, dusty space. Perhaps even a bit of rhyme along the edges, as if was once cool and clear had become stagnant, salty and toxic.

I have given myself to a cause that has not given back. I have spent my time and money, my heart and soul, my body and spirit, my health, my essential essence, on something that now feels as if it was never going to work.  And I feel like there is a part of me jeering from the sidelines at what’s left of my optimism. It’s not an attractive duality.

On one hand, I am alive. I have a better job than I did five years ago. My children are mostly grown and are mostly happy and healthy.  I have a better car than I did five years ago. On the other hand, I have more expenses as a result of the last five years. I don’t feel, financially, that I have gained any ground. I actually feel more stressed and more pressed that I did then. But that’s not the biggest issue.

Five years ago I was consumed with optimism for the future. Five years ago I had a plan, I had specific goals. Five years ago, I had no idea what my plan was going to cost me. Beware, you dreamers, you may get what you want, but you might not like the price you will pay.

So here I am, in my precarious space, looking back and wondering if I can even dare to look ahead.

I don’t have it in me to replicate the steps I took five years ago. I will never again risk everything for a dream. My grandfather would say, “never say never”. And perhaps I will find the courage to risk again. But right now, I just want safety. I want to wake up and know how bills will be paid, to know I am safe from eviction, to know I can keep my car for another month. I want to know where grocery money will come from for the month. I want peace.  And right now, I have none of those things.

I got exactly what I wanted, five years ago. I traveled. I started over. I gave literally everything to a relationship I wanted above all else. I got my wish. But what now? We still don’t live together. We still have no real plan for how to be a couple in real time, in real life. I just don’t know what my life means right now.

I have been on the brink of despair a lot this past year. I have semi-seriously contemplated ending my life in favor of the unknown. I value my life too much to actually end it, though. I wouldn’t put that kind of burden on my kids, either. But yeah, it’s been a rough patch. And I don’t know exactly how to get out of my emotional or financial predicament.

I feel like a complete failure.

But… perhaps because I have always had a spark of optimism regardless of how bleak things seem, I have started a course in dreaming and planning for the future. Crazy, right? I am at the lowest point in my life since those dark days when I was 17, and here I am meditating and free writing about creating a “best life”. Duality. It’s my thing, I guess.

So here’s to 2017. Whatever comes, I’m here. I’m not ready. I’m probably as far from ready as I have ever been. But… just bring it. We’ll see what shakes out.

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Happy New Year!!

Welcome 2014!!

As most of you know, Henning has spent the last three months in the states with me. As you also know, I was booted out of Denmark, so our situation has been complicated by not only health issues but logistical issues, as well.

I have been busy making a new life in NH, while Henning has been figuring out home hemodialysis in Denmark. We had planned on his being able to travel with the NxStage System One (the only portable home dialysis machine) but due to tons of red tape and a complete lack of urgency of his care team, time was ticking away, and away, and away.

Thanks to NxStage and HDU (courtesy of Rich Berkowitz) Henning was able to travel to the US for a conference in October. He was officially invited by HDU, and Rich gave us tons of advice and lots of pushing in the right direction. NxStage stepped up and got on board, as Henning is the first Scandinavian and only one of a handful of Europeans on home dialysis to travel to the US, and perhaps the only one to do so for  such an extended visit. This is a Very Big Deal, medically speaking.

Thanks to some sponsorship, good connections and a lot of great timing, Henning’s visit has been relatively drama-free. He did have some access issues at first. In Florida at the conference, it was getting pretty urgent as he was unable to dialyze for nearly three days. That’s a lot of days. NOT good. But due to some great support, material, emotional and physical, from NxStage staff, he was able to finally get a good cleaning and we had a great time, over all. I’ll post more about the conference now that I will have some free time to really work on my backlogged posting.

Once we were back in NH, access issues continued to be a problem. Thankfully we have great support here as well, again thanks to NxStage finding a local doctor willing to work with them and Henning. International prescription and care issues continue to be a problem with home hemo users and international travel. His doc did a scan and discovered Henning’s venus access site was about 1/4″ away from the actual fistula. Again, NOT GOOD. And… also… no great surprise. I’ve said it before and I’m sure I’ll say it again, Henning’s care in Denmark is sub-par, and that’s the most flattering comment I can make.

Once Henning established a new access, he’s had no further access issues. In fact, dialysis has been pretty boringly unremarkable, and that’s GOOD.

We have visited some great friends, had some great dinners out, done too much shopping, and spent too much money in the three months he’s been here. We took the girls to New York City the weekend before Christmas, and that was quite an adventure! The girls had never been, and it was great seeing the city fresh from their points of view. Neither Henning nor I had been to the City during the holidays, and we did have a few cranky moments in the crush of Times Square, but otherwise we had a blast. We walked over 120 blocks, and checked off almost everything on our “If you could only spend one day in NYC what would you do” list.

We had a quiet Thanksgiving and Christmas and spent lots of time with the girls. Our oldest lives next door to us, so spending time with her, her fiance and our grandson is always fun!! Megan and Larry are getting married on New Year’s Eve, so I’m thrilled that Henning will be able to be here for that.

We are sad to see his time here end. He goes back to Denmark on January 6th. So we have just a few more days together, this time around. We are already planning the next visit sometime in the spring.

Look for more posts as we catch up after a few months of just reveling in each other’s company.

I am launching a new site, as well. I have decided that it’s time for another journey in transformation. Anyone that knows me knows I spent several years before I met Henning in Self-Discovery Mode. I have managed, with time, therapy, and lots of introspection, to “get past” a lot of major life issues. As most of you also know, I still struggle with finances and fitness. SO… I have decided to challenge myself with a long-term project I call 60 to 50.

You can read about it here: http://60to50.wordpress.com/2013/12/30/welcome-to-60-to-50/

Join me as I say goodbye to 2013 and welcome 2014 with open arms and an open heart.

Happy New Year!!